Sickle Cell Disease (SCD) is a genetic disorder passed down from parents. It causes red blood cells, normally round and flexible, to become sickle-shaped and rigid. These sickle cells block blood flow, leading to severe pain, organ damage, and even death.
SCD primarily affects people of African, Caribbean, and Asian descent. Early diagnosis is crucial, allowing for prompt treatment and prevention of complications. Newborn screening programs help identify babies with SCD shortly after birth.
Living with SCD is challenging and people with the condition experience:
Severe pain crises: intense pain episodes lasting for days or weeks.
Anemia: fatigue and weakness due to lack of red blood cells.
Increased risk of stroke, particularly in children.
Organ damage: to the liver, kidneys, and spleen.
Blood Donations are Lifesavers
Regular blood transfusions can replace damaged red blood cells and alleviate symptoms. Donating blood is a simple yet crucial way to help those with SCD.
Supporting the Fight Against SCD
Support RAFFA International Development Agency: RAFFA raises awareness and improves access to healthcare for affected communities.
Learn More: Educate yourself and spread awareness.
Hope for the Future
While a significant health challenge, there is hope. Research continues to develop new treatments, including gene therapy and drugs to prevent crises. With ongoing research and improved healthcare access, people with SCD can lead longer, healthier lives.
If you want to become an blood donor please click here.
DID YOU KNOW?
Sickle Cell disorder is inherited from both parents, whilst Sickle Cell trait is inherited from only one parent
Sickle Cell disorder can affect anyone, but is predominantly found in people of African and Caribbean heritage.
Approximately 1 in 79 babies born in the UK, carry the Sickle Cell trait
Almost 300 babies are born in the UK each year with Sickle Cell
A simple blood test will tell whether you have Sickle Cell disorder or the trait
Children with Sickle Cell disorder, are at increased risk of strokes, with the risk being highest between the ages of 2 and 16
The pain caused by Sickle Cell disorder, is generally referred to as a Sickle Cell crisis
Since 2017, the NHS has provided a ground-breaking service for patients with sickle cell. It now provides regular transfusions to many patients, which help avoid sickle cell patients going into crisis, so they can enjoy a more normal life.
Additional Resources:
Sickle Cell Foundation: [https://sicklecellfoundation.org/]
National Heart, Lung, and Blood Institute: [https://www.nhlbi.nih.gov/about/intramural-research/sickle-cell]
Let's work together to raise awareness and support a brighter future for those living with SCD.
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